My daughter and I live with her traumatic brain injury and its inconsistencies and unpredictable behavior every single day. Some mornings I have been woken up with a pleasant ray of sunshine. For example, she stood in my doorway and asked "Did somebody order some loves and hugs?" and when I said "Yes, I did!" she comes running in and gives me a huge hug and a big kiss that are both so full of love and her innocence.
Then, there are the "other" days. One day, I was in the kitchen doing dishes and I hear her muttering something and I asked "What?" (thinking she was talking to me) and she ignored me. So I walked into the living room and asked her what she said. She looked up at me with the meanest stink-eye ever and said "I hate your ugly face. I want you out of my house." I try to keep a straight face because I know she doesn't mean it, there was some odd little trigger and she will snap out of it. I tell her "Well, that's okay because I love you and want you to stay in MY house forever." Then about 10 minutes later, she's hugging my waist crying her heart out saying how sorry she is, she loves me and wants to stay with me forever.
|Angry outburst plus an added fist shaking. At her birthday party. Haha.|
There are some days, her anxiety levels are high. There are some days, her silly happiness is bubbling over.
She was diagnosed with "moderate intellectual disability" and I warn people, don't look at the diagnosis because she is very intelligent. She's acutely aware of others' emotions, nuances and very, very intuitive. She's easily frustrated and easily redirected. I fear for her future because the world is cruel. If she is by herself walking and falls on the sidewalk and there's nothing there to pull herself up with, she can't yet get up off the ground. She's not afraid to ask for help. She's not afraid to tell somebody that something makes her uncomfortable and that they are in her bubble. She thrives on praise. She's very strong headed, loving and has the best personality in a child but...
She's perfectly imperfect and consistently inconsistent. I like her. A lot. Each day is a surprise in the world of Traumatic Brain Injuries.
|Excited for Fifth Grade and Super happy|